Imagine something very personal and precious being taken away from you a little at a time. You’re not in control of when it goes and you can’t argue about the amount removed. This is the predicament faced by people with vitiligo – a common skin disease that causes areas of the body to progressively lose [...]

Imagine something very personal and precious being taken away from you a little at a time. You’re not in control of when it goes and you can’t argue about the amount removed. This is the predicament faced by people with vitiligo – a common skin disease that causes areas of the body to progressively lose [...]

Oftentimes there are great ‘conversations’ that go on over on our Vitiligo Friends facebook page. Today, was an especially good one that I wanted to share with you. Friend wrote: I have to ask how you all have coped with having vitiligo. I have had it for about 9 years now. It just keeps getting [...]

A few days ago Kam left a comment here about her success with protopic repigmenting vitiligo. It’s wonderful and hopeful news… I had quite a lot of pigmentation around the eyes mainly. First my GP told me there was nothing that could help me. For other reasons I changed my GP and the new GP [...]

From my heart to yours, I wish you a healthy and prosperous New Year filled with exciting adventures! Many hugs, Nathalie Related PostsVitiligo: dealing with the changesVitiligo: A balancing actWrite your way to a happier life with vitiligo Testimonial that protopic worksHow does protopic repigment vitiligo

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Nathalie talks with a stranger at a cafe, Elizabeth, about what looks like vitiligo white patches on her arms and forehead, but is actually a condition she was born with. Elizabeth grew up in a family that called her white patches “birthmarks”, and 1 out of every 3 family members have the birthmarks, as well…what’s [...]

I had the need to talk to others about vitiligo. The more people I talked to the better my chances of finding a cure. One thing was sure, I couldn’t talk to my wife about it. She would just clam up, she couldn’t face it. Just ignore it and it will go away. I am sure I didn’t make it easy for her to talk about, I was very frustrated, frustrated with the disease and with not being able to talk to her about it.

Nathalie talks with her daughter, Emerald, about how vitiligo effects their lives and Emerald shares what it’s like to love and live with someone who has vitiligo.
Also, Nathalie discusses the process of starting a face-to-face vitiligo support group in your area.

Being open with people about your vitiligo is a very liberating experience, and one that you will not regret!
I would be the first to raise my hand if we were asked collectively, “Who tries to cover their vitiligo?”. Primarily, I cover my vitiligo because I prefer not to look at it, and secondarily, for it to be less noticeable to others; however, I am not ashamed to have vitiligo. That said, I don’t walk around like a proud peacock fluffing my white feathers for all to see, either. Rather, it …

Tonight I came across a very interesting article about a product sold online which is used to whiten the skin so the vitiligo white patches are no longer obvious. Sounds like a promising alternative, but it comes with potentially deadly side-effects.